Thank you to The Oakland Press for bringing awareness to Hidradenitis Suppurativa by highlighting the story of Sandra Guilbault, one of our key volunteers that struggled with her condition for years. Now that it is well-controlled, she donates a tremendous amount of her time to advocating for patients and advancing Hidradenitis Suppurativa causes with Hope for HS.
Saturday, August 11th.
Ann Arbor, MI.
Super Hero 5k for Hidradenitis Suppurativa Awareness.
Register to Walk or Run:
Click here to register as a walker or runner. Use the code “HOPE4HS18” for $5 off of your registration fee!
HS Hero T-shirt:
To purchase an HS Hero shirt on Amazon, click here – please order this at least 2 weeks before the event! Note that the womens’ sizes run very small.
If you would like to come to the event and help raise awareness, but walking and running are not in the cards, we could use volunteers to help make the event a success! We could use help at the registration table, handing out medals, helping people stay hydrated with bottled water, and standing along the scenic route to keep people from getting lost during the run. Use the following form to let us know you’re willing to volunteer your time to make the event a success!
Join us on Saturday, June 9th for a candlelight vigil to raise Hidradenitis Suppurativa awareness.
ROYAL OAK, MICHIGAN
People affected by Hidradenitis Suppurativa (HS) around the world will be lighting candles on Saturday, June 9th, during #Hidradenitis Suppurativa Awareness Week, to #BrightHStoLight
Hope for HS, a national 501(c)(3) nonprofit patient organization based in Detroit, will host a LIVE candlelight vigil, commencing at 8 p.m. in Memorial Park in Royal Oak, MI. Please join us in lighting a candle in the darkness, and take an important step toward bringing #HidradentisSuppurativa out of the shadows.
We want to help raise global awareness of HS, a common and painful skin disease by lighting a candle in solidarity to support all people with this disease, foster compassion and understanding in order to shed light on this affliction. We will also honor those who have succumbed to HS-related complications.
Hidradenitis Suppurativa: a painful autoinflammatory skin disease that dramatically affects quality of life. Not contagious. No known cause. No cure. There are many unknowns about Hidradenitis Suppurativa. Many of these unknowns lead us to hide the disease from the world. Many of these unknowns lead to a lot of us not even having a diagnosis. HS has a terrible effect on us, our families and the community. We stand in the same darkness as the medical profession. In hope, we believe our actions may encourage increased public interest that will help doctors find a cure.
Please join us in lighting a candle in the darkness, and take an important step toward bringing Hidradentis Suppurativa out of the shadows.
Hope for HS is proud to host this live #BringHStoLight vigil in support of a global campaign for 2018 HS Awareness Week, created by Penny White of Atlanta, Georgia. For further information about how you can host a vigil near you and a list of global participants please visit https://penspen.wixsite.com/bringhstolight/
We still need residents from 14 states to reach out to their state governments about a proclamation like this one. We have all the information and supporting documentation you need to make this a very simple process. If you are interested in joining us to have #HS Awareness Week recognized in all 50 states, contact us to see if your state is represented and how you can get involved!
On April 9th, Governor Bill Haslam proclaimed June 4-10, 2018 Hidradenitis Suppurativa Awareness Week in the state of Tennessee! Thanks goes to resident Elena Bou for contacting her state government to secure the proclamation.
Hope for HS has produced a letter of support and sample Whereas clauses available to anyone that wishes to ask their state government to proclaim Hidradenitis Suppurativa Awareness Week. Use the Contact Us form to let us know your e-mail address and state, and we’ll send you everything you need!
Governor Rick Snyder has proclaimed a week for Hidradenitis Suppurativa Awareness in Michigan for the second year in a row. June 4-10, 2018 will be recognized to raise awareness in the state of Michigan, hopefully reducing the time to diagnosis and increasing the quality of care for everyone affected by HS.
There is still time to get HS Awareness Week recognized by your state government! Use the contact form to tell us what state you’re in and we’ll send you all the information, letters, and whereas clauses you’ll need to ask your governor to recognize HS Awareness Week in your state!
The first of our state proclamations are beginning to come in! Thanks to the efforts of Penny White, author and patient activist, Governor Nathan Deal has proclaimed June 4-10, 2018, Hidradenitis Suppurativa Awareness Week in the state of Georgia! Governor Deal was one of two governors that also proclaimed a week in June for Hidradenitis Suppurativa awareness last year.
There is still enough time to request that your governor recognize Hidradenitis Suppurativa Awareness Week in your state! Use the Contact Us form to let us know what state you’re in, and we’ll send you all the information you need to make the request of your governor’s office. The process is quick and easy, and you may remain anonymous if you prefer.