Thank you to The Oakland Press for bringing awareness to Hidradenitis Suppurativa by highlighting the story of Sandra Guilbault, one of our key volunteers that struggled with her condition for years. Now that it is well-controlled, she donates a tremendous amount of her time to advocating for patients and advancing Hidradenitis Suppurativa causes with Hope for HS.
An online survey, created for patients by patients from The HS Diet Connection, is collecting data about food triggers for Hidradenitis Suppurativa. This thorough, anonymous survey should take no more than 15 minutes of your time, and will provide valuable insight into which food triggers are most common among patients with HS.
This survey is intended to collect anonymous data from patients that have already attempted elimination diets to determine if their Hidradenitis Suppurativa flares are triggered by the food that they eat.
We still need residents from 14 states to reach out to their state governments about a proclamation like this one. We have all the information and supporting documentation you need to make this a very simple process. If you are interested in joining us to have #HS Awareness Week recognized in all 50 states, contact us to see if your state is represented and how you can get involved!
Tune in on Facebook live on Tuesday, April 24th at 7:00 PM Eastern to view our presentation on disability benefits for Hidradenitis Suppurativa from attorneys at the law firm of Benjamin Levine – disability specialists based in Michigan but serving clients nation wide.
If you have any questions for the attorneys before the presentation begins, comment here or e-mail them to firstname.lastname@example.org.
On April 9th, Governor Bill Haslam proclaimed June 4-10, 2018 Hidradenitis Suppurativa Awareness Week in the state of Tennessee! Thanks goes to resident Elena Bou for contacting her state government to secure the proclamation.
Hope for HS has produced a letter of support and sample Whereas clauses available to anyone that wishes to ask their state government to proclaim Hidradenitis Suppurativa Awareness Week. Use the Contact Us form to let us know your e-mail address and state, and we’ll send you everything you need!
Governor Rick Snyder has proclaimed a week for Hidradenitis Suppurativa Awareness in Michigan for the second year in a row. June 4-10, 2018 will be recognized to raise awareness in the state of Michigan, hopefully reducing the time to diagnosis and increasing the quality of care for everyone affected by HS.
There is still time to get HS Awareness Week recognized by your state government! Use the contact form to tell us what state you’re in and we’ll send you all the information, letters, and whereas clauses you’ll need to ask your governor to recognize HS Awareness Week in your state!