Hope for HS is a 100% volunteer, grass-roots, patient and caregiver directed non-profit organization, supporting and advocating for Hidradenitis Suppurativa patients since 2013.
We first came together at a local support group and realized that there is so much work to be done! Who better to do it, and be sure that it is done right, than the people that live with this disease every day?
Since 2013 we have successfully launched several new chapters for in-person support groups, creating a bridge between HS doctors and patients in their area. Our perennial efforts to raise awareness through events, speaking engagements, and national proclamation campaigns empower members of the HS community to get involved and create change for patients everywhere.
HS affects patient's quality of life in many ways. Together, we can make a difference with community education, specialty HS clinics, top-notch research and the most amazing group of volunteers. Our patients are not alone. We are the Hope for HS.
Rita Pichardo, MDHope for HS Volunteer
My first Hope for HS meeting was enlightening and I walked away feeling much better then I did when I walked in, almost as if a brick had been lifted from my shoulders.
Angela and Sandra were not only full of information but they were comforting, supportive and they listened. Other members in the meeting were warm with the same issues you have at different stages of HS but you realize you’re not alone. I have amazing support from my family but it was different hearing you’re not the only one feeling so isolated with this disease and the feelings we feel on a daily basis. I highly recommend this meeting to everyone with HS. They ask nothing from you at this meeting, they just want you to be yourself. I can’t wait for the next meeting.
KAREN B.DETROIT SUPPORT GROUP
HS is so debilitating. One of the most painful condition one can have. Painful, destructive and depressive. I struggle with HS everyday of my life and have since I was 10. I am a stage 3 since diagnosis in 2010. I don't know a life without pain. Hope for HS helps us all get the awareness out. The more talk there is about HS, the more likely to find the pathway to a cure.
DANIELLE M.FACEBOOK SUPPORT GROUP
I love volunteering with Hope for HS because they have created a community composed of doctors, patients and volunteers who are passionate about increasing disease awareness, education, improving quality of life, and creating a safe space for patients. I believe that Hope for HS is a wonderful resource that responds to the needs for the HS patient community. It has been a privilege to be a part of a community that uplifts, supports and brings hope for the future of HS.
María del Mar Meléndez-González, MDHope for HS Volunteer
Hope for HS provides something incredible and needed for people living with HS: a community of hope of support. I'm honored that I can help support Hope for HS in bringing people together.
Steve Daveluy, MDHope for HS Volunteer
I know as a clinician that I'm limited by the time required to see patients individually. Hope for HS is a way to reach and educate a larger community. People with HS have a lot to gain from learning from and supporting each other, and it also gives me an opportunity to continue to learn and understand how to support the patients with HS that I care for better.
Chris Sayed, MDHope for HS Volunteer
It is a unique opportunity to engage with providers and patients who are passionate and have the same goal of improving outcomes for HS. It allows a platform for growth and understanding of HS from all perspectives. It creates a great environment to create support for patients who may feel isolated due to this condition.
Tara Jaleel, MDHope for HS Volunteer
I can remember a time when I’d never met or spoken with another HS patient. Being a part of this growing community where patients are able to connect with one and another and share vital information is some of the most important work I’ve ever done.
Athena GierboliniHope for HS Volunteer
Building a community for people people living with HS is the most rewarding aspect of volunteering with Hope for HS.
Angela DresselhausHope for HS Volunteer
I am passionate about HS because I am passionate about the patients and their caregivers. I am passionate about their love of life and resilience. I am thankful to be witness to these patients who are an example of what the human spirit can endure and overcome. If a small portion of my career can help in reducing their suffering and telling their story then I will be fulfilled. I have never met a community like this and it is an honor to serve our HS patients and their caregivers.
Iltefat Hamzavi, MDHope for HS Volunteer