Hope for HS is a 100% volunteer, grass-roots, patient and caregiver directed non-profit organization, supporting and advocating for Hidradenitis Suppurativa patients since 2013.
We first came together at a local support group and realized that there is so much work to be done! Who better to do it, and be sure that it is done right, than the people that live with this disease every day?
Since 2013 we have successfully launched several new chapters for in-person support groups, creating a bridge between HS doctors and patients in their area. Our perennial efforts to raise awareness through events, speaking engagements, and national proclamation campaigns empower members of the HS community to get involved and create change for patients everywhere.
My first Hope for HS meeting was enlightening and I walked away feeling much better then I did when I walked in, almost as if a brick had been lifted from my shoulders.
Angela and Sandra were not only full of information but they were comforting, supportive and they listened. Other members in the meeting were warm with the same issues you have at different stages of HS but you realize you’re not alone. I have amazing support from my family but it was different hearing you’re not the only one feeling so isolated with this disease and the feelings we feel on a daily basis. I highly recommend this meeting to everyone with HS. They ask nothing from you at this meeting, they just want you to be yourself. I can’t wait for the next meeting.
KAREN B.DETROIT SUPPORT GROUP
HS is so debilitating. One of the most painful condition one can have. Painful, destructive and depressive. I struggle with HS everyday of my life and have since I was 10. I am a stage 3 since diagnosis in 2010. I don't know a life without pain. Hope for HS helps us all get the awareness out. The more talk there is about HS, the more likely to find the pathway to a cure.
DANIELLE M.FACEBOOK SUPPORT GROUP