Barriers to care and unmet needs are some of the most important topics hidradenitis suppurativa patients discuss with one another at our support group meetings and within our online community. In late 2018, I joined five other passionate patient advocates that are admins for Facebook groups representing over 25,000 hidradenitis suppurativa patient voices in a…
At the December 10th, 2019 Hidradenitis Suppurativa support group meeting of the Detroit chapter of Hope for HS, Josee Smith, BSc, and medical student at Wayne State University School of Medicine presented a summary and brief overview of topics and presentations from the 4th annual Symposium on Hidradenitis Suppurativa Advances, followed by Q&A from Angie…
Newsflash? Probably not. Rallying cry? Let’s hope so! “Hidradenitis Suppurativa needs more research!” Of course, patients, caregivers, and advocates have been shouting this for years. But now an opinion written by two well-respected HS researchers from University of California San Francisco and Rockefeller University, who also happen to be on the board of directors of…
On February 6th, at the at 8th annual European Hidradenitis Suppurativa Foundation Conference in Poland, Dr. Wayne Gulliver was bestowed the Dr. Albert Neisser Lecture Award for his pioneering research into the use of biologics for the treatment of Hidradenitis Suppurativa. “One of my Swedish colleagues said this is like the Nobel Prize of Dermatology,”…
Maybe you’ve seen the miraDry videos in your social media feed and wondered if it could help your Hidradenitis Suppurativa (HS). According to the company website, the miraDry System uses thermal energy that targets and eliminates the sweat and odor glands in your underarm. Once those glands are eliminated, they do not grow back. In theory,…
