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Advocacy

HS Doesn’t Have Me

My name is Karen, I’m 56 years old and I my got first lesion when I was 15 on my groin. I’ve been dealing with this disease almost my entire life, or least it feels like it. Like many others I sought care and was misdiagnosed. Doctors would pinch, poke and cut me on their…

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acceptance candle Hope for HSDaily Life with HS

Accepting the HS Life

According to Dr. Elizabeth Kubler-Ross, there are Five Stages of Grief: denial, anger, bargaining, depression, and acceptance. Her observations of – and work with – terminally ill patients led her to develop this concept. These same five stages can be applied to life with Hidradenitis Suppurativa (HS). Once HS is diagnosed, a new “normal” life…

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