Documentary Filmmakers at April 23rd Meeting
Hope for HS is pleased to share exciting news!
A documentary team from PBS will be doing a spot on Hidradenitis Suppurativa for the 2019 season of Medical Stories, to highlight the true impacts of living with HS and raise awareness among the general public. This is slated to air in the summer of 2019.
The filming crew will be at the April 23rd Hope for HS meeting in Detroit. We encourage all that are able to attend! Please be assured that if you attend, you do not have to appear on film if you do not wish to. If you do provide permission to appear on film, your permission is granted via a signed release form on that day. Private discussion within the context of the support group meeting will not be filmed or disrupted. Pre-arranged interviews with the HS community will also take place on this day and subsequent days.
This is an excellent opportunity and platform for the voice of those with HS to be heard and to raise awareness. We hope that you share in our excitement. If you plan to attend the April 23rd meeting in Detroit and have any questions, please feel free to contact us at firstname.lastname@example.org.
My daughter has been suffering with h.s. for several years. She has had countless surgeries to excise affected areas. Each time there is drainage that lasts for weeks. She has used wound vacs for extended time for drainage. She is on an almost steady diet of Keflex which I think has become resistant. She is allergic to almost all antibiotics. We are looking for a doctor that specializes in this condition. She is currently awaiting delivery of another wound vac for the non-stop drainage. Her last surgery was about three weeks ago. She is extremely stressed and we are looking forward to any possible help.
My heart breaks for you and especially your daughter. My 21 year old son also has HS. As a parent I feel so helpless and wish I could take away his pain; physical and emotional. I truly hope that your daughter can find some comfort.