HS on the go: What is in your kit?
Do you have an HS kit? If you are like me, you might have a kit for your office, car, and stashed at a friend’s house. My kits often includes a full change of clothes and an HS first aid kit. Let us know in the comments what is in your kit!
My HS first aid kit includes:
Bandaging: assortments of Equate bandages, Tegaderm, Nexcare blue tape, menstrual pads and liners, petroleum jelly packets, Q-tips, nonstick gauze pads, and scissors.
Topical Pain Relief: lidocaine back pain patches and roll on, ThermaCare patches, and Voltaren Gel
Clean Up: alcohol wipes, paper towels, spritz bottle with Hibiclens, and wet wipes
Heather Koon
Hi. I have been battling with HS for almost 2 years now, taking medication for over a year. I have really been struggling lately and have been looking for a support system/group. I think one of the worst parts of this condition is feeling like you are all alone dealing with this. I live in the Western North Carolina area. Do you know of any online or in person resources?
aldresselhaus@hopeforhs.org
Hi Heather! We currently only have online meetings due to COVID-19. Check out our online support group page for details.
Amy
Hi I didn’t know I had HS until the last couple of months… I’ve had it for many years now and I thought I was just gross. Anyway, all those years ago I had to stop wearing deodorant because I thought it was the cause. Is there. Deodorant you recommend or one you would include in the kit as well?
aldresselhaus@hopeforhs.org
I’m a fan of Lume. Or, I just don’t wear any at all. You could try the ones that spray on to avoid rubbing the area (if that is a problem for you).
Rhonda U.S.P.S
Where can you find Lume ?
aldresselhaus@hopeforhs.org
You have to go direct to their site. https://lumedeodorant.com/
Christina M Hart
I use crystal, spritz deodorant. I buy it on Amazon. It’s free of all the crap that clogs your pores.
Felisa
Hi… I have never thought to make a kit like this… You have changed my life. Thank you!
aldresselhaus@hopeforhs.org
Glad to help!
Gigi
I think this kit is amazing, however, I really don’t know how all of it is used could you kind of explain how you use some of the items you have. I know what the bandages are for of course and that some of the cleaning items are used for cleaning the area. But some of the other things I’m a little curious as to how they are used to treat to manage your HS. I Hope this isn’t a stupid question but I’m kind of struggling with what to use as well. I have the tegaderm and I purchased some curaid non-stick pads but I’m having a little trouble because I need to have it on my inner thighs it doesn’t really stay in place. I’m just kind of struggling with how to wrap that area so that I can contain the drainage any advice would be helpful Thanks.
aldresselhaus@hopeforhs.org
Hey! I’ll make a little video sometime soon explaining all the bits! Some people have had success using feminine products because they can be stuck on the outside of clothes. For your thighs you might try some boxer brief style underware from the men’s section. Stick some pads on the legs of the boxer briefs to catch any drainage.
Zig
I’m relieved to know I’m not the only one. I feel so alone sometimes. I don’t ever tell anyone. I was finally diagnosed at 16. I’ve had it feels like all my life. I hate it when I want to wear a tank top or none sleeve shirt and can’t. Then my friends ask me why don’t I just wear it and I have to make something up like oh I don’t like that. It makes me so sad. But I must think positive because life is so much more and it could be worse.