Hope for HS Webinar Series: Individualized Treatment Plans
Join Hope for HS and Dr. Sayed for an informative session on individualized treatment plans for Hidradenitis Suppurativa. This webinar is open to all!
Community Meet-Up: Register Here
Hope for HS Virtual Support Group Meeting: North Carolina Chapter
Helen Bui, an HS research fellow at UNC will share her research on pediatric cases of Hidradenitis Suppurative. Dr. Sayed will lead an open discussion group following Helen’s presentation.
Hope for HS Webinar Series: Nutrition and Diet
Join Hope for HS and Jillian Ondreyka for an informative session on Hidradenitis Suppurativa and nutrition . This webinar is open to all!
Hope for HS Virtual Support Group Meeting: Hablemos acerca de la Hidradenitis Supurativa
Welcome to the inaugural Virtual Walk, Run, & Rest for Hidradenitis Suppurativa Awareness, hosted by Hope for HS!
Every year, in the first full week of June, the Hidradenitis Suppurativa (HS) world comes together to raise awareness. This year, for the first time ever, we can celebrate global HS Awareness Week with the time-honored tradition of an awareness run! But HS is a painful, progressive, debilitating disease that – in severe cases – takes the ability to walk and run away from the person living with it. So we also Rest for HS – to highlight what this disease can take away and to allow those of us most dedicated to this cause (the people actually living with HS) to participate in a classic way to raise awareness. Register Here
We are so glad you found us! Hope for HS is expanding online support options to better serve your needs. We offer a private Facebook group, physician attended virtual support group meetings, monthly community meet ups, and an educational webinar series.
In order to maintain a safe space and patient confidentiality, our support group meetings and community meet ups are limited to patients and their immediate caregivers (loved ones), and Hope for HS affiliated medical personnel.
Everyone is invited to attend the webinar series and to follow the public Facebook page.
Hope for HS hosts monthly meetings on Zoom. Each meeting features an HS expert or a topic relevant to the HS community. These meetings require registration and are only open to those with HS and their caregivers (loved ones).
Hope for HS hosts quarterly meetings in Spanish on Zoom. Each meeting features an HS expert or a topic relevant to the HS community. These meetings require registration and are only open to those with HS and their caregivers (loved ones).
Hope for HS hosts informal chats on Zoom. These meetings require registration and are only open to those with HS and their caregivers (loved ones).
These 1 hour educational sessions are open to everyone, live streamed on Facebook, and recorded for future viewing.
Hope for HS hosts a private Facebook group where patients and caregivers can connect between meetings.
Online Meeting Team
Angela Dresselhaus is a community lead for the North Carolina chapter of Hope for HS and is currently leading virtual support group meetings. Angela is a librarian dedicated to connecting people to the resources, training, and support needed to thrive.
Athena Gierbolini is from Harrisburg Pennsylvania and is the Chapter Lead for the Hershey Group. She is currently studying Business Management at Western Governor’s University and hopes to graduate by Summer of 2021. Athena became involved with Hope for HS after attending an in person meeting 2 years ago. Meeting and connecting with other patients has been a healing part of her journey and she enjoys working to help other patients experience the same.
Helen Bui, born and raised in Charlotte, NC, is a 4th year medical student at the University of North Carolina School of Medicine. She is completing her year-long research fellowship in hidradenitis suppurativa with Dr. Christopher Sayed and plans on applying for dermatology residency during the Fall of 2021.
Maria del Mar Melendez-Gonzalez is from San Juan, Puerto Rico and attends Universidad Central del Caribe School of Medicine. She completed a research fellowship focused on the study of hidradenitis suppurativa with Dr. Christopher Sayed at University of North Carolina Dermatology, where she will be attending dermatology residency starting July 2022.
Nathaly Holt was born in El Salvador, enjoys the beach, Bachata dancing and trying different ethnic foods. She is married, has two cats and has been living with HS for over 10 years. Nathaly is knowledgeable in holistic alternative medicine and finds meaning in listening to people and in helping people breathe a little easier even if that means just having a conversation with them, giving a hug or going with them to a doctors appointment.