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May Meetings

May 12, 2021 5:30-7:00 PM (Eastern)
Hope for HS Virtual Support Group Meeting: Hershey Chapter
Dr. Kirby will lead this session.
Register Here
May 16, 2021 3:00 PM (Eastern)
Hope for HS Virtual Support Group Meeting: Atlanta Chapter
Atlanta meetings are facilitated by Lauren Orenstein, MD and Jamie D. Weisman, MD
Register by emailing hopeforhsatl@gmail.com
May 27, 2021 7:00-8:30 PM (Eastern)
Hope for HS Virtual Support Group Meeting: Wound Care Supplies

Join Penny Jones, a wound management clinical nurse specialist, as she leads a support group session focused on wound care supplies.

Register Here

June Meetings

June 5, 2021 2:00 PM (Eastern)
Community Meet-Up: Register Here
June 10, 2021 7:00-8:30 PM (Eastern)
Hope for HS Virtual Support Group Meeting: North Carolina Chapter

Join Hope for HS and Dr. Jaleel for a group discussion on advocacy in healthcare, personal lives, and at work.

Register Here

June 13, 2021 2:00-3:00 PM (Eastern)
Hope for HS Webinar Series: Watching Out for Comorbidities

Join Hope for HS and Dr. Holahan for an informative session on Comorbidities and Hidradenitis Suppurativa. This webinar is open to all!

Register Here

July Meetings

July 17, 2021 2:00 PM (Eastern)
Community Meet-Up: Register Here
July 10, 2021 2:00-3:00 PM (Eastern)
Hope for HS Webinar Series: Hidradenitis Suppurativa Patient Decision Aid

Join Hope for HS and Dr. Tan for an informative session on the Hidradenitis Suppurativa Patient Decision Aid. This webinar is open to all!

Register Here

July 21, 2021 5:30-7:00 PM (Eastern)
Join Hope for HS andDr. Kirby for an informative session called, “‘Research in HS. What we’re studying, what we’ve learned and how to get involved.”

Register Here

August Meetings

August 8, 2021 2:00-3:00 PM (Eastern)
Hope for HS Webinar Series: Individualized Treatment Plans

Join Hope for HS and Dr. Sayed for an informative session on individualized treatment plans for Hidradenitis Suppurativa. This webinar is open to all!

Register Here

August 14, 2021 2:00 PM (Eastern)
Community Meet-Up: Register Here
August 29, 2021 2:00-3:30 PM (Eastern)
Hope for HS Virtual Support Group Meeting: North Carolina Chapter

Helen Bui, an HS research fellow at UNC will share her research on pediatric cases of Hidradenitis Suppurative. Dr. Sayed will lead an open discussion group following Helen’s presentation.

Register Here

Welcome!

We are so glad you found us! Hope for HS is expanding online support options to better serve your needs. We offer a private Facebook group, physician attended virtual support group meetings, monthly community meet ups, and an educational webinar series.

In order to maintain a safe space and patient confidentiality, our support group meetings and community meet ups are limited to patients and their immediate caregivers (loved ones), and Hope for HS affiliated medical personnel.

Everyone is invited to attend the webinar series and to follow the public Facebook page.

Virtual Support Group Meeting
Hope for HS hosts monthly meetings on Zoom. Each meeting features an HS expert or a topic relevant to the HS community. These meetings require registration and are only open to those with HS and their caregivers (loved ones).
Monthly Community Meet Ups
Hope for HS hosts informal chats on Zoom. These meetings require registration and are only open to those with HS and their caregivers (loved ones).
Webinar Series
These 1 hour educational sessions are open to everyone, live streamed on Facebook, and recorded for future viewing.
Private Facebook Group
Hope for HS hosts a private Facebook group where patients and caregivers can connect between meetings.
Past Meeting Materials

Surgery: When to Consider and How to Plan for it (Chris Sayed, MD). Slides without images: Download

Hope for HS Webinar Series: Wound Care Recording. Join Hope for HS and Hadar Lev-Tov, MD for an informative session on Wound Care in Hidradenitis Suppurativa. Recording here

Online Meeting Team

Angela Dresselhaus is a community lead for the North Carolina chapter of Hope for HS and is currently leading virtual support group meetings. Angela is a librarian dedicated to connecting people to the resources, training, and support needed to thrive.

Helen Bui, born and raised in Charlotte, NC, is a 4th year medical student at the University of North Carolina School of Medicine. She is completing her year-long research fellowship in hidradenitis suppurativa with Dr. Christopher Sayed and plans on applying for dermatology residency during the Fall of 2021.

Maria del Mar Melendez-Gonzalez is from San Juan, Puerto Rico and attends Universidad Central del Caribe School of Medicine. She completed a research fellowship focused on the study of hidradenitis suppurativa with Dr. Christopher Sayed at University of North Carolina Dermatology, where she will be attending dermatology residency starting July 2022.

Nathaly Holt was born in El Salvador, enjoys the beach, Bachata dancing and trying different ethnic foods. She is married, has two cats and has been living with HS for over 10 years. Nathaly is knowledgeable in holistic alternative medicine and finds meaning in listening to people and in helping people breathe a little easier even if that means just having a conversation with them, giving a hug or going with them to a doctors appointment.