Hope for HS is a 100% volunteer, grass-roots, patient and caregiver directed non-profit organization, supporting and advocating for HS patients since 2013. All of the work we do is accomplished through volunteers who freely give their time to advance our mission. We asked our volunteers to share why they are passionate about Hope for HS.…
Written by Helen Bui and medically reviewed by Chris Sayed, MD and Tara Jaleel, MD Hidradenitis Suppurativa is not a rare disease The prevalence of HS ranges from 0.1 to 2% of the US population.1 Since HS is often out of sight and not talked about it may seem like it is uncommon, but you’ve…
My name is Karen, I’m 56 years old and I my got first lesion when I was 15 on my groin. I’ve been dealing with this disease almost my entire life, or least it feels like it. Like many others I sought care and was misdiagnosed. Doctors would pinch, poke and cut me on their…
Jackson Gillies has his parents – and Luciano Pavarotti – to thank for his love of music. As he explained during his Tedx Santa Barbara talk in 2017, he suffered colic as a baby. He cried for hours on end. Until his mother turned on the television set and the great opera legend began to…
