Walk, Run, or Rest for Hidradenitis Suppurativa Awareness
Hey there! Happy HS Awareness Week!
If you’ve ever longed for a Hidradenitis Suppurativa Awareness race like you’ve seen for cancer, heart disease, or Alzheimer’s, the wait is over. For the first time ever, Hope for HS has launched a virtual 5k/10k event, complete with medals and t-shirts, to raise awareness of Hidradenitis Suppurativa.
Unlike those events, however, Hope for HS recognizes that it takes an able body to walk or run. So we adopted the theme of “Rest” and designed an adorable sloth mascot and pro-rest slogan t-shirt to go along with it.
Why Rest?
The irony of a 5k/10k walk/run for Hidradenitis Suppurativa is certainly not lost on us. Doesn’t sweating lead to HS flares? Didn’t my doctor tell me it’s worsened by friction? And isn’t it just too painful to walk some days? Not to mention the (widely experienced but rarely treated) symptom of fatigue that accompanies a diagnosis of Hidradenitis Suppurativa… how can the people that care most about the Hidradenitis Suppurativa cause be expected to participate? Enter #resting4HS!
Resting for HS means recognition that:
-
- when we are in pain, we MUST rest
- Hidradenitis Suppurativa can cause crippling daily fatigue
- prioritizing rest is one way to help manage stress, and stress is a trigger for a lot of folks living with HS
- sometimes our bodies can’t walk long distances, even though we may really want to
Beyond HS Awareness Week
Registration opens today to coincide with the 2021 Hidradenitis Suppurativa Awareness Week, but participants have until December to meet their goal. In celebration of HS Awareness Week, we have a discounted registration price until June 13th.
Walk, Run, or Rest for a good cause!
All proceeds from this event go toward the missions and programs of Hope for HS, a 501(c)(3) nonprofit organization founded and directed by people living with Hidradenitis Suppurativa and their caregivers. Because we are a volunteer organization, 100% of our donations and fundraisers go directly to our missions and programs, allowing us to help more people and have a greater impact.
Fundraisers earn free registration!
In case the cost is a barrier for you, Hope for HS will refund the registration price for any person that creates a fundraiser for the event and raises $50 or more. The RunSignUp platform makes this seamless and easy, including Facebook fundraiser integration built-in. Once your friends learn that you are participating for a good cause, the support will roll in!
Spread the word and tag us!
Whether you walk, run, or rest, spread some Hidradenitis Suppurativa awareness by posting a photo on the race website or social media. Tag us (@hopeforhs on all socials) and use the hashtags #walking4HS, #running4HS, and #resting4HS. Show off that medal and wear your race shirt proudly!
aldresselhaus@hopeforhs.org
Race kits are already arriving in the mail! My sister shared a picture of her kit today!
Marilyn
Hi, I had H,S. for years from 1995 to a few year ago 2010est, when I finally used a combination treatments from a Dermatologist which was Vics Vapor rub and a dose of Benedryl for allergies, every night, this combination worked well for me. I had H.S. sores under my breasts and on insides of my legs by my pantyline which left bruises and scars. Very embarrassing when I wanted to wear swimsuits etc. My sores finally cleared up and i continue to take Benedryl every night and no more sores. My brother also said he had HS too and used similar treatments for his HS sores too. So anyone gets this infections not just women. We are now in our 60’s age range but we had HS when we were in our 40s or 50s but took forever to clear them up. good luck.