SUPPORTING PATIENTS

Our support groups relieve some of the
tremendous isolation and emotional burden that accompanies a life with Hidradenitis Suppurativa.

ADVOCATING FOR CHANGE

We empower the HS community to interact with payers, researchers, and their government to bring about the change needed to someday find a cure.

RAISING AWARENESS

Raising awareness of Hidradenitis Suppurativa is vital in promoting compassion, understanding, and a correct, timely diagnosis.
1 IN 100

PEOPLE THOUGHT TO HAVE HIDRADENITIS SUPPURATIVA

7 YEARS

AVERAGE TIME UNTIL CORRECT DIAGNOSIS

10%

OF PATIENTS REPORT LOSING A JOB BECAUSE OF HS

2x

MORE LIKELY TO COMPLETE SUICIDE

100% VOLUNTEER

Because our organization is 100% volunteer, with no paid staff and very little overhead, any funds raised go directly toward our programs

TRULY GRASSROOTS

Our founding directors realized there is a tremendous amount of work to be done for HS, so they banded together to do it

PATIENT AND CAREGIVER DIRECTED

Every member of our Board of Directors is a patient themselves, or the spouse or parent of someone diagnosed with Hidradenitis Suppurativa

OUR INITIATIVES

The work we do to achieve our mission:
improving the lives of everyone affected by Hidradenitis Suppurativa