SUPPORTING PATIENTS
Our support groups relieve some of the
tremendous isolation and emotional burden that accompanies a life with Hidradenitis Suppurativa.
tremendous isolation and emotional burden that accompanies a life with Hidradenitis Suppurativa.
ADVOCATING FOR CHANGE
We empower the HS community to interact with payers, researchers, and their government to bring about the change needed to someday find a cure.
RAISING AWARENESS
Raising awareness of Hidradenitis Suppurativa is vital in promoting compassion, understanding, and a correct, timely diagnosis.
1 IN 100
PEOPLE THOUGHT TO HAVE HIDRADENITIS SUPPURATIVA
7 YEARS
AVERAGE TIME UNTIL CORRECT DIAGNOSIS
10%
OF PATIENTS REPORT LOSING A JOB BECAUSE OF HS
2x
MORE LIKELY TO COMPLETE SUICIDE
HS on the go: What is in your kit?
Do you have an HS kit? If you are like me, you might have a kit for…
Did you miss the Hidradenitis Suppurativa Awareness Virtual Summit presented by My Gold Lining?
Jasmine IVANNA Espy coordinated a virtual summit to raise awareness about Hidradenitis Suppurativa. Jasmine brought together experts,…
FMLA & Your Rights
The North Carolina chapter of Hope for HS hosted Hannah Demeritt during our July 2020 virtual meeting. …
Hope for HS is Offering Virtual Support Groups
Connecting with others who have Hidradenitis Suppurativa (HS) is often difficult under normal circumstances and the coronavirus…
Share your experience with COVID-19 + Hidradenitis Suppurativa
A global registry for patients with Hidradenitis Suppurativa that have also had covid-19 has been developed by…
Patient Voice Published by British Journal of Dermatology
Barriers to care and unmet needs are some of the most important topics hidradenitis suppurativa patients discuss…